Burning Nights help raise awareness for CRPS and RSD sufferers
Not much is known about the cause of Complex Regional Pain Syndrome (also known as Reflex Sympathetic Dystrophy). For the people this affects it is a crippling condition that results in CRPS symptoms such as chronic pain, burning pains and hypersensitivity in varying degrees at the different stages of CRPS.
The NHS itself defines CRPS as a ‘poorly understood condition’. What is known is that injury appears to be the trigger for most cases, and the pain can spread from one limb to the entire body, possibly affecting that person for several years.
Although it is difficult to estimate how common the condition is, there is a study which claims that up to 1 in every 3,800 people in the UK every year are RSD sufferers. It was often thought to be a psychosomatic condition, but research has since disproved this.
One woman trying to change the way health professionals and the general public perceive this debilitating condition is Victoria Abbot-Fleming, author of Burning Nights and a CPRS sufferer and campaigner. At just 24 years of age, Victoria had what she describes as a ‘simple accident’ at work, which developed into tormenting pain, ulcers, infections and eventually a knee amputation, leaving her wheelchair bound.
There is a charity for every cause, but because it is automatically assumed to be a psychological condition, CRPS does not have a permanent research facility within the UK. Victoria is determined to be the voice for those who suffer in silence, and encourages people to write to their regional MPs, current Minister for Health, Jeremy Hunt and Minister of State for Disabled People Mark Harper.
Get involved in the fight by purchasing RSD awareness products, including awareness sets which supply CRPS information cards and chronic condition medical alert information dog tag where you can store your completed medical information. For Victoria’s story, and to find out more information on the condition, please visit www.chronicpaincrps.com.